Wednesday, August 27, 2014

Amazing.

It is amazing what you can accomplish when you are not depressed.  So in other words, it's amazing to realize how most regular people go about living their daily lives.  I came to this realization the other day that for the first time in two years I feel normal.  Yes, you heard me right--the meds are WORKING!!!  I am not depressed!!!!  My doctor at Mayo told me that my depression and anxiety were most likely even worse than I thought and that they were affecting my life much more than I even realized.  I heard her, but I didn't really think about it.  I mean, I have been dealing with this for fifteen years now, and I thought I knew everything.  I have been medicated since the age of 20, have been hospitalized twice, and have gone on and off meds three times before this fourth and final time two years ago.  But she was right; I didn't realize how much my mental illness was affecting every single aspect of my life.  I'll explain.


So, most people without actual mental illness feel depressed sometimes.  That's normal.  You might feel bummed about the weather.  Or maybe you just had a crappy day.  Or you're tired and don't want to do much.  You might end up thinking about family/friends/pets who passed away, or old girlfriends/boyfriends, shitty bosses, bad stuff you did........but when it comes down to it you can live your life like a functional person.  Someone with MDD (major depressive disorder) and/or GAD (generalized anxiety disorder, most frequently paired together but not always) doesn't.  Everything is a big deal; every day little things like tending the litter box or cooking dinner or taking the dog out or making the bed......those things can sometimes be so hard.  It's very serious, and I don't think it's taken seriously enough, because of the fact that most of us know someone (or someones) who has taken antidepressants at one point or another.  Some people had post-partum depression.  Some people needed extra help after their mom passed away, or to get through school, or whatever.  I'm not at all saying that these people shouldn't take meds; by all means if it helps them to feel good then they should do whatever is necessary.  My point is that most of the time those people do not not need to be on meds permanently; it is not a lifelong incurable illness they are dealing with.  People who do have mental illness are not taken seriously enough because most people don't understand it.  It's more than just feeling sad.  It's feeling hopeless, worthless, meaningless, devoid of self confidence, beyond reason, completely drained of energy and the capacity to deal with life.  It's a lifelong battle that will never fully come to an end.  For me, my house was always so dirty.  I felt worthless as a wife because how could I ever expect to have kids when I couldn't even clean up after my husband and myself and three cats?  I would tell myself I was going to clean the next day and then I would wake up and not do it.  I would watch TV for hours when my husband wasn't around, because what would I do instead?  Think about how shitty everything is and how I have no friends?  Who would want to listen to me anyway?

The last two years have been unfathomably difficult, and it started with me deciding to go off my meds in the summer of 2012 so we could start trying for a family.  Everything from that moment on just went downhill and kept on going down the deepest hole I could have ever imagined.  Between my pelvic pain, losing my job, my husband's misery at his own job, managing his bipolar disorder, having surgery, coming down with my stomach illness, losing our precious cat, not being medicated and doctors, doctors, doctors it has been almost unbearable at times.  I wished for my death every day.  I stopped caring.  If this was what life was like then what was the point?  Had I been medicated all of these things still would have happened, but my capacity to handle them wouldn't have been so compromised.

I am currently dealing with tapering off of Ativan which is incredibly difficult and sucks, but I know it's all for good reasons (cannot take it during pregnancy).  I am down to a quarter of a miligram this week and will take my last dose on Friday.  Then that's it.  It sucks because physiologically it makes me feel pretty crappy.  However on Monday I went to school to talk to my principal and do a few things to prepare for going back to school next week.  It was pretty mellow but I had a bad headache from the withdrawals.  When I got home I wanted to lay down and chill but I knew I had to change the litter box because it smelled really bad.  So I decided I would do that first so that I could really relax.  Then I decided I had done that I might as well vacuum.  Then I thought, well since I did that I might as well......and before I knew it I had had two productive hours that were not even that big a deal.  I stopped suddenly and realized....then meds are working.  I am starting to actually feel better.  I just know that once the effects of this shitty Ativan wear off everything will be different.  So much better.  I can't wait.

Friday, August 22, 2014

I'm Cycling Next Month!!!!

I'm so fucking excited!!!  I spoke to my nurse at the RE's today and she told me that we will most likely start cycling before my next period!  That's one month sooner than I thought we would be cycling and puts me in a perfect spot for where I want to be birth month-wise (so psyched it just happened to work out that way).  I'm praying that this will all work out and that it will give me a take home baby.  We are so ready (well, as ready as we'll ever be; is anyone ever really truly ready?) to be parents.  

My meds are worked out for now.  One good thing that came out of that horrible experience two weeks ago (see my last post) is that I was able to cut my Ativan dose in half since I had already gone through all the withdrawals.  I will have to cut it out completely before I start cycling but that shouldn't be too hard since it is only half a miligram at this point.  I will cut it in half next week and then cut it out altogether.  I am taking ten miligrams of Lexapro and will continue on with that permanently.  I am going to see my psychiatrist next week to get clearance from her for my RE.  They want a letter stating what my treatment will be during my pregnancy.  I will keep close contact with her so that if my dosage needs to be upped at all we can do that.  I hope the appointment goes well; I think it should.

Next Friday I am getting a saline sonogram as well as all the results from our genetic counselor.  We will also have all of our other test results back by then.  So far, I think we are looking at slight MFI (low morph) but considering that they have said people can often get pregnant naturally with that I am feeling a diagnosis of "unexplained infertility" in our future.  But I guess we will see and know by next Friday!!!!  Then we will also get to determine whether we are going to go with IUI or IVF.  Honestly, I'm hoping for IVF.  I want the embryos for the future so that we don't have to go through this shit again when we want to try for a second child, especially considering my age.  

This is all very exciting.  I think, for the first time in two years, things are finally starting to look up for us, at least a little bit.  I don't want to jinx anything, and I'm sure it won't be the last time we experience hard times, but I have to say that these past two years very nearly broke us (as people, not our marriage--that's now stronger than ever).  I feel like if I can live through all of that then I can live through anything.

Monday, August 11, 2014

On a Related Note........

Now for the not so awesome stuff.  My meds are seriously screwing with me.  I haven't slept in two weeks.  Last night I only slept for two hours.  I finally had a nervous breakdown when my husband got up.  School starts in three weeks.  I can't go back feeling like this.  My heart pounds all day, my whole body is shaking, my head is foggy and dizzy and my eyes hurt and have a hard time focusing.  This is not right.  The RE told me that he does not want me taking Ativan during pregnancy but that he was fine with the Lexapro.  So I have not been taking the Ativan because I am afraid of getting addicted to it (it is a controlled substance and it is easy to get addicted--I have in the past because I took one each morning upon waking.  I managed to get off of it pretty easily but I was already taking my SSRIs for a long time at that point).  I cut my Lexapro dose in half because I felt it was too much and it was most definitely screwing with me way too much.  The problem is now I don't know what's happening--am I having withdrawals from that?  From the Ativan?  Do I have to just stop the Lexapro altogether?  I am beyond frustrated because I feel like no one can help me.  I just keep having bad reaction to antidepressants now--even after taking them for so many years!!  Honestly, the biggest mistake I have ever made in my life was to wean off of them.  My life has been hell ever since (for other reasons) and because of the fact that I've not been medicated I have not been coping with everything very well.  I had such high hopes after leaving Mayo and am literally devastated that the treatment plan is going like this.  I was doing great with the small increments until just over two weeks ago.  I am now going to look for a psychiatrist who specializes in reproductive psychiatry and can help me with treatment now, during and after pregnancy.  I am well aware that this all needs to be under control before I can start cycling with the RE so I am really hoping that we can figure something out.  Fuck.  It just never, ever stops or gets any easier, does it?.........
----------------------------------------------------------------------------------------------------------------------------------

So I just got back from seeing my psychiatric nurse practitioner and my therapist AND I also spoke on the phone with a psychiatric nurse at the Mayo Clinic.  I was completely freaking out when I wrote the first half of this post this morning, so I am a bit more stable now.  Everyone is in agreement that I am suffering from withdrawals, all of my own idiotic doing.  My doctor at Mayo told me to slowly raise my dosage of Lexapro by 5 mgs at a time which I had been doing.  But at 15 it started to get to be too much and by 20 (target dosage) it was ridiculous.  I couldn't handle it (even though that is the dose I took for ten years before stopping it in 2012).  So I called and she told me to take 15.  But I'm an asshole and thought "I felt best when I was at 10" so I decided I was going to do that.  Terrible.  Then I just abruptly stopped the Ativan even though I know that it is addictive as I mentioned before--but I didn't think about any of this.  I didn't think "I may just be having withdrawals" because I freaked out thinking that it was all affecting me the way everything else has this past year and I spiraled.  This is what happens.  So now I will stay on 10 mgs of Lexapro and hopefully continue on that permanently.  I will resume the Ativan for now and taper off once the Lexapro has taken full effect.  Now maybe I can get some goddamn sleep and stop trying to do everything myself.  I need to remember that these doctors all know what they are talking about.

The End.

The RE

Well, we saw the RE last Friday.  First of all I will say that I absolutely LOVE our doctor!  He was really kind and enthusiastic and very clear about all our treatment options.  He pretty much laid it all out on the table.  He said that he saw a very slightly low morph in the sperm count but that it was very common and we could very likely conceive on our own with it the way it is (though he did order a recheck).  So far that's all we have as far as possible issues.  We also did a lot more bloodwork as well as genetic testing.  But the doctor basically said we just need to decide if we're going to do IUI or go straight to IVF.  What?!  I was a little shocked; I don't know why, I mean after all we were at a fertility clinic.  I guess I just hadn't fully accepted the fact of us being "infertile" yet.

But we are.  So we are waiting on test results to decide what we are going to do.  Honestly, at first I was wanting to do 1-2 rounds of IUI but now I'm kind of leaning towards going straight to IVF.  I feel like because I am 35 and at this point will not be giving birth until I am 36 I would like to have frozen embryos so that I don't have to worry about when to try for #2.  But we have to see what insurance says too.  The good news is that whatever treatment we choose is all covered!  Depending on the test results though, they may make us do IUI before IVF since it is so much cheaper.  So we will see.  We also still have this month and next month to try on our own too, since I am in the 2WW right now and next month I will be doing cycle day bloods and all that fun stuff.  So I think I will feel a little better about moving forward with everything at that point if I am still not pregnant after that.

I am honestly thrilled about this though.  No matter what at this point, I now know that I will be having a baby at some point next year, whether we manage to get it done ourselves or if we need a little help from the doctors.  We will soon have a plan in place, have an amazing team with crazy high success rates and a really great doctor who makes us both feel very comfortable and who is available to us anytime we need to ask questions.  Awesome!


Wednesday, August 6, 2014

We're Going to the RE!

Well I finally decided that it was better to make an appointment while I am not in school yet just in case I have to do a lot of running around.  I want to take as little time off as possible in order to make sure that any sick time I have goes to future maternity leave if needed.  I figured it has certainly been plenty of time--that's 6 months with charting and temping and 10 months of unprotected sex.  I'm 35 now so the 6 months is enough.  I was going to wait until October to make the appointment but at this point I'm done.  I just want to see what they have to say.  MH was fighting me on it a little bit but my feeling is if they say they see nothing then I suppose we'll keep trying for another couple of months before we move on to treatment.  But what if they do find something?  At this point we don't have time to waste anymore.  My age is a huge factor and I DON'T want to just wait around without any knowledge anymore.  So we're going on Friday.  We have viewed the videos on their website and sent them all our medical history and filled out all the paperwork.  We're fucking going.  And I'm very excited!  I'm nervous--but excited.  I just want to have a plan at this point.

I am doing a little better health wise, but I'm having some trouble adjusting to my meds.  I was fine at 5 and 10 mgs but when I went up to 15 and now 20.....I'm having a hard time.  I am not sleeping--like, waking up every half hour not sleeping.  And also some other stuff.  I'm hoping it will pass, but I may have to scale back.  I'm going to contact my doctor.  I will of course share all of this with the RE and I realize that it's not ideal for me to be going through this while trying to get pregnant but I don't even care.  I know it will all get worked out soon.  I've felt worse than this and I've been through worse!  Again; no time to fucking waste anymore.  Time to get this show on the road!  MH starts his new job on August 25th, I go back to work September 2nd.  I'd like to have an idea of where I stand with meds and TTC by then.